Staying Connected

Katie Wright

Katie Wright started this podcast in 2018 to talk to other people about their stories with Vascular Ehlers-Danlos syndrome (VEDS), which she was diagnosed with in 2017. Over the years, this podcast grew to include people affected by related conditions, like Marfan, Loeys-Dietz, and variants of unknown significance (VUSs).

Over 127 episodes, Katie talks with others about their stories and to researchers about their work.