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GENEration Hope

GENEration Hope - Ron Kleiman

In-depth conversations with scientists, clinicians, advocates, and families at the front lines of rare disease, gene therapy, and genomic medicine. Hosted by rare disease parent and filmmaker Ron Kleiman, GENEration Hope explores the science, the ethics, and the human stories behind the fight to give children with genetic disorders a better future.

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12 odcinków

  1. Newborn Genetic Screening: Florida’s Sunshine Genetics Act | Adam Anderson 32:50
  2. David Liu: Rewriting DNA to Treat Rare Disease | Gene Editing & AI 52:17
  3. GENEration Hope Update - Sept 29, 2026 3:04
  4. Allyson Berent on Angelman Syndrome, FAST, GTX-102 & Parent-Led Drug Development 1:29:23
  5. How RNA Therapies Are Changing Duchenne | Dr. Yoshitsugu Aoki 36:43
  6. Dr. Guoping Feng (MIT) on SHANK3 Gene Therapy, Brain Disorders, and What’s Coming Next 59:21
  7. How a Parent-Led Movement Grows: Sue Lomas (Phelan-McDermid Syndrome Foundation) 40:11
  8. Ep 5. Dr. Katy Phelan: The Origins of Phelan-McDermid Syndrome + Why Hope Is Growing 38:44
  9. Inside the Fight to Cure Rett Syndrome – Monica Coenraads Interview 1:11:41
  10. Dr. Alex Kolevzon on Gene Therapy, SHANK3 & the Future of Treatment | Generation Hope 49:49
  11. Dr. Curtis Rogers on Phelan-McDermid: Diagnosis, Newborn Screening, AI & Gene Therapy Delivery 56:28
  12. Sequencing Every Baby? Newborn Genomes, GUARDIAN & Rett – Dr. Wendy Chung 48:21