Seeing Within
Losing My Sight to Stargardt's Disease
4:39
Six weeks ago I sat in a hospital and got told my sight had deteriorated significantly. Today I went back for the follow-up, and I already knew it wasn’t going to be good news.
This is what I recorded that morning, before I left the house.
I talk about the strange grief of losing your sight slowly rather than all at once — how you don’t just grieve it once, you grieve it over and over, every…