Rare Candor
Eosinophilic & Rare Disease Cooperative
Like most people living with a rare or chronic complex disease, we spend a good deal of our time navigating the dysfunctional yet critical healthcare system. Going to appointments or sometimes ER visits, dealing with medical gaslighting, medication planning and research, dealing with insurance companies and pharmacies, dealing with the impact of having a disease that no one can see, and managing the everyday things that pop up that are unexpected. These are just a few of the topics we'll talk about in a real candid way.