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HAE Speaks

US HAEA

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.

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Episodes

75 episodes

  1. Less Stress, More Joy! Holiday Wellness Tips from the HAEA Health Team! 4:54
  2. Nina's HAE Treatment Journey 37:18
  3. Choosing Coverage with Confidence: An HAE Patient's Guide to Open Enrollment with CSL 23:37
  4. End of Year Legislative Update: What it Means for the HAEA Community 17:58
  5. Transitioning to Medicare: Helpful Insights from the HAEA Health Team 7:53
  6. HAE Speaks: Roundtable with the CEO - Tony Has a Conversation with a CSL Executive Director 14:05
  7. Stronger Together: One Family's HAE Journey 17:06
  8. Summer Safety Tips with the HAEA Health Team 6:48
  9. Roundtable with the HAEA CEO – A Conversation with KalVista’s Chief Commercial Officer 18:36
  10. Perspectives from a Mother and Daughter with HAE 26:31
  11. Supporting Adult Scholars in the HAE Community: Tina's Story 30:45
  12. Don't tough it out: Flip the Switch on HAE Attacks 26:07
  13. Episode 60: End of Year Legislative Update 27:48
  14. Episode 59: What’s next for Hereditary Angioedema - What You Need to Know 27:23
  15. Episode 58: 10 Must-Ask Insurance Questions for HAE 29:33
  16. Episode 56: Understanding Medicare Enrollment 21:30
  17. Episode 55: CHAPTER-3 , Pharvaris Oral Prophylaxis Phase 3 Study 12:30
  18. Episode 54: How to Ease Your Mind 33:53
  19. Episode 53: Legislative Update from our Washington Office 24:20
  20. Episode 52: End of Progression: Understanding the Full Spectrum of a Bradykinin-mediated Angioedema Attack 19:47
  21. Episode 51: Legislative Series - Insights from Two Grassroots Leaders 36:23
  22. Episode 50: Innovations in HAE with KalVista 25:55
  23. Episode 49: Ahead of the Swell: Uncovering the Target That Could Stop Attacks 28:09
  24. Episode 48: Spotlight on HAEA Grassroots Advocacy Network Regional Leaders 20:40
  25. Episode 47: US HAEA National Summit Ask the Experts Q&A 48:19
  26. Episode 46: My Cross-Country Trip Across the United States to Raise HAE Awareness 20:10
  27. Episode 45: HAEA DIY Community Events - Red Lake Nation HAE Awareness Walk 11:07
  28. HAE, the holidays and you. Navigating the holiday season with HAE 7:22
  29. Episode 44: A word from the HAE Community 10:44
  30. Episode 43: Kate is living Beyond HAE 41:40
  31. Episode 42: Dusty & Mark’s HAE Journey 36:57
  32. Episode 41: Back to School tips with Mandy 20:21
  33. Episode 40: College preparedness & HAE 20:17
  34. Episode 39: The importance of mindfulness 17:25
  35. Episode 38: Hosting an HAE DIY event 22:12
  36. Episode 37: Transitioning to Caregiver 15:32
  37. Episode 36: Dr. Riedl discusses the HAEA ⁠shared decision making tool⁠. 15:15
  38. Episode 34: Lora's HAE Journey 16:13
  39. Episode 32: Navigating college with HAE 21:53
  40. Gene Therapy in HAE: A look into BioMarin’s Investigational Study 16:31
  41. Episode 34: A Newly Diagnosed Perspective 24:47
  42. Episode 32: HAEA year in review 46:39
  43. Episode 31- Jess shares the importance of Advocating for HAE 13:17
  44. Episode 30- Adina's HAE journey 17:19
  45. Episode 29- Bobbi shares her journey with HAE 15:28
  46. Orladeyo: Red shares his HAE journey 11:47
  47. Episode 28- Troyce provides tips about going back to school 9:38
  48. Episode 27- Abby shares her insights about the HAEA Brady Club 8:26
  49. Episode 26- Missy & Sarah discuss the 2022 HAE IN-MOTION® 12:23
  50. Episode 25- Lisa & Mike share information about HAE day :-) 2022 19:26