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PH Insights

Pulmonary Hypertension Association

The Pulmonary Hypertension Association presents ”PH Insights,” a podcast amplifying patient voices, sharing meaningful conversations with health care professionals and insights into pulmonary hypertension. Join PHA, people with PH and PH experts, as they share important information to support the PH community.

Sito del podcast

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Episodi

56 episodi

  1. A Global Perspective: Navigating Access to Care 31:17
  2. Life Continues: You’re More Than Your Diagnosis 8:28
  3. Misdiagnosis: A Common Challenge in Pulmonary Hypertension 38:16
  4. The Ever-Evolving Landscape of PH and HHT 24:22
  5. Living Boldly with PH: Nicole Creech 7:31
  6. Living Well with Pulmonary Hypertension: A Conversation with the PH Insights Advisory Team 23:38
  7. Life Continues: Working with PH 8:38
  8. Life with Scleroderma: Challenges, Hope and Advocacy 24:10
  9. A Discussion with Leaders in PH Research: PHA’s Support of PH Research (Part 2) 23:44
  10. Managing Scleroderma and Pulmonary Arterial Hypertension 9:03
  11. A Discussion with Leaders in PH Research: PH Research Past to Present (Part 1) 16:11
  12. You’re Not Alone: Coping with Anxiety and Depression in PH 14:33
  13. Hope, Resilience, and Rare Disease: How Dan Lier’s Mindset Shaped His Recovery 29:03
  14. Living with Sjögren’s-related PH: Dawn Grandell’s Story 11:07
  15. Advocacy on Capitol Hill: How Patient Voices Shape Policy 27:59
  16. Navigating Sleep-Disordered Breathing with Pulmonary Hypertension 55:13
  17. Decoding Disparities: What Drives PAH Outcomes in Hispanic Populations 27:59
  18. Who Speaks for You? Making Your Health Care Wishes Known. 57:05
  19. Understanding the Relationship between Methamphetamine and Pulmonary Arterial Hypertension 30:03
  20. Pediatric to Adult Congenital Heart Disease: Managing your diagnosis 48:24
  21. Learning Together: The Early Days of PHA’s Patient Education 30:14
  22. When Care Goes Beyond Treatment: How a Support Group Redefined Support 24:19
  23. Shaping the Future: Women Innovators Transforming Pediatric PH Research 29:06
  24. Partnering with Your Care Team: Advocacy in PH – Part 2 32:11
  25. Partnering with Your Care Team: Advocacy in PH – Part 1 28:30
  26. Philanthropy at PHA: From Tribute Gifts to Tax Changes 12:43
  27. Prepare for 2026 Open Enrollment: Key Insurance Changes You Need to Know 55:04
  28. Every Gift Matters: How the PHA Community Gives Back 24:02
  29. Living with Sickle Cell Disease and Pulmonary Hypertension 39:30
  30. How the SOAR Act Can Keep Patients' Oxygen Flowing 26:45
  31. Resilience in the Face of Adversity: Keisha's PH Story 33:03
  32. Help Us Breathe: PH Patients Advocate for Oxygen Reform 36:56
  33. Be Ready for Anything - Facing Emergencies with PH 36:47
  34. Five Tips for Traveling with a Chronic Illness 19:07
  35. Two Conditions, One Journey: Understanding PAH and HHT 44:02
  36. Building a Supportive Pulmonary Hypertension Community 15:10
  37. Find Community: Connecting with people who get it 19:22
  38. Sarcoidosis-Related Pulmonary Hypertension 19:35
  39. Volunteer Highlight with Mitzi McIver-LaBarge 23:26
  40. Silent Threats: Blood Clots and Pulmonary Hypertension 53:18
  41. How PH Community Workshops Empower through Education 28:29
  42. Access Specialized PH Care with the PHA Care Center Network 29:24
  43. Left Heart Disease: A Common Cause of Pulmonary Hypertension 23:32
  44. The Role of Exercise in Managing Pulmonary Arterial Hypertension 32:55
  45. Mindful Meditation with Michele Freeman 6:21
  46. Relax and Recharge: Practical Strategies for Managing Stress 34:52
  47. PHA’s Commitment to Advancing PH Research, Part 2 21:18
  48. PHA’s Commitment to Advancing PH Research, Part 1 22:46
  49. What Parents and Caregivers Should Know About Pediatric PH 35:30
  50. Navigating life with CTEPH: Experiences with PTE surgery 41:53