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Beyond the Count

ITP Australia and New Zealand

Beyond the Count is a podcast about life with Immune Thrombocytopenia (ITP). Through personal stories, expert interviews and practical advice, each episode explores the everyday challenges and small wins of living with a rare autoimmune condition. Whether you’re newly diagnosed, supporting someone, or just looking to learn more, this podcast is here to inform, support and connect.

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34 Folgen

  1. FATIGUE & ITP SERIES - Part 2: Fatigue in ITP is Real | How the I-WISh Study Helped Patients be Heard 34:30
  2. FATIGUE & ITP - Part 1 - What Does Fatigue in ITP Look Like? 36:53
  3. ITP: More Than a Diagnosis 37:07
  4. So, You've Been Diagnosed with ITP. Now What? 15:01
  5. Decoding Risk Series - Part 4: Becoming a Partner in Your Care 28:45
  6. Stronger Together: How Global Collaboration is Changing the Future of ITP 24:56
  7. Decoding Risk Series: Part 3 - The Words that Trick Our Brains 18:43
  8. Clinical Trials Explained: What they are, How they work and How to know if they're right for you 42:41
  9. Decoding Risk Series: Part 2 - Why Medication Leaflets Look So Terrifying 19:29
  10. Watch and Wait: Why doing nothing is sometimes the best medicine. 25:43
  11. Decoding Risk Series: Part 1 - Why Side Effects Happen 25:43
  12. Blood Clots in ITP: What Patients Need to Know 25:10
  13. "But You Don't Look Sick": The Invisible Reality of Living with ITP 29:43
  14. The 2026 ITP Patient Conference Highlights 40:50
  15. The Bruise That Stopped Me 14:14
  16. What It’s Like to Be Diagnosed with ITP as a Kid with Connor & Kim 34:39
  17. Living with ITP: How our haematology nurses play a vital role in bridging the gap in care. 33:39
  18. ASH 2025 Highlights: Progress, Possibilities & What’s Ahead for ITP 21:00
  19. ITP Explained: The Basics Every Patient Should Know 38:11
  20. ITP in Kids Series: When to Treat and What to Expect 28:47
  21. Making Complex Simple: How Medical Advisors Support the ITP Community 38:57
  22. ITP in Kids Series: ITP and Toddlers 37:40
  23. ITP in Kids Series: My child has just been diagnosed with ITP: What's Next?? 28:19
  24. Building Global Connections: The story of the International ITP Alliance 42:23
  25. Second Opinions and Shared Care: Navigating ITP with Confidence 25:15
  26. Fuelling Your Health - Managing Side Effects with Food and Supplements 29:13
  27. ITP & Me: Creating a book for Teens, by Teens 30:58
  28. Fuelling Your Health - Supporting the Immune System 26:14
  29. Why Shared Decision Making Matters 26:30
  30. Fuelling Your Health - Reducing Bleeding through Nutrition 15:53
  31. Fuelling your Health - Boosting Platelet Counts Naturally 31:46
  32. The Emotional Rollercoaster of ITP 35:09
  33. Growing up with ITP 20:42
  34. Your ITP Questions, Answered 22:04