Castuner

CdLS Connections

Canadian CdLS Foundation

Navigating the challenges & triumphs of Cornelia de Lange Syndrome (CdLS) and where we explore, learn, and share everything related to CdLS. We will learn from families, clinicians, researchers & educators and those exploring new frontiers relevant to the CdLS community.

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22 Folgen

  1. Ep. #22 - 💜🏥 Clinical Series: Dr. Antonie Kline & Amy Kimball - HDAC8 Gene in CdLS 49:19
  2. Ep. #21 -💜🏥 Clinical Series: Dr. Antonie Kline & Amy Kimball - SMC3 Gene in CdLS 50:57
  3. Ep. #20 -💜🏥 Clinical Series: Dr. Matt Deardorff, Victoria Duke & Dr. Lynn Kerr - SMC1A Gene in CdLS 51:36
  4. Ep. #19 -💜🏥 Clinical Series: Dr. Peggy Marcon, Dr. Kathy Loomes & Dr. Rudy Sanchez - GI Issues in CdLS 1:00:20
  5. Ep. #18 -💜🏥 Clinical Series: Julia O'Connor PhD. Dr. Rowena Eng & Dr. Rudy Sanchez - Pain & Behaviour in CdLS 55:43
  6. Ep.#17 💜 Family Series: Marci Dunning - Freya's Mother 1:49:36
  7. Ep. #16 💜 Family Series: Maria Watkins & Ella- "Life on M Avenue" 1:36:09
  8. Ep. #15 - 💜 Family Series: Dawn Seitz Rauscher - Team Nikki 2:23:00
  9. Ep. #14 -💜🏥 Clinical Series: Dr. Peggy Marcon- Blenderized G-Tube Feeds for CdLS 35:43
  10. Ep. #13 - 💜 Family Series: Remembering Tami — A Father’s Story, GI Complications & Advocacy in CdLS 2:21:55
  11. Ep.#12 - 💜 Family Series: Edgar Solis - A Father's Story - Daniel 41:47
  12. Ep.#11 - 💜 Family Series: Charlotte Nordin - A Mother's Journey & Vera 1:10:52
  13. Ep.#10 - 💜 Family Series: Majda Ficko - A Mother's Journey & Dimitre's Legacy 1:26:44
  14. Ep.#9 - 💜 Family Series: Emily Turner - Brave Heart - Warrior Spirit 25:36
  15. Ep.#8 - 💜 Family Series: Brenda King - Molecular Testing at Age 33- Leanna's Story 2:30:56
  16. Ep.#7 - 💜 Family Series: Meet Madison - a thriving young woman with CdLS 1:58:59
  17. Ep.#6 - Interview with Voices for Ability Radio 30:48
  18. Ep.#5 - 💜 Family Series: Kelly Hall-Baranesky - Journey with Sandro - Grace's Service Dog 46:09
  19. Ep.#4 - 💜🏥 Clinical Series: Jenn Evans PT - Rebound Therapy 1:00:39
  20. Ep.#3 - 💜🏥 Clinical Series: Carmen Wilde - The Cyclical Journey with Grief 1:18:20
  21. Ep.#2 - 💜🏥 Clinical Series: Sarah Strathy-Alie SLP - Speech & Language Across the Lifespan PART 2 42:56
  22. Ep. #1 - 💜🏥 Clinical Series: Sarah Strathy-Alie SLP- Speech & Language Across the Lifespan PART 1 57:39